Get our newsletter!
challenging poor care with expert knowledge
Resources
Laura Fitzgerald
Salim Razak
What do I need to know about NHS Continuing Healthcare?
This booklet provides information for families of people with learning disabilitiesabout the scope and process of NHS continuing healthcare, together with possible implications and questions they may want to ask.
Click here to download the booklet
A Guide to UK-based Free Mental Health Helplines by Cassiobury Court.
Care and Treatment Reviews
Care and Treatment Reviews (CTR) have been developed as part of NHS England’s commitment to transforming the services for people with learning disabilities and/ or autism who display behaviour that challenges, including those with a mental health condition.
The CTR ensures that individuals get the right care, in the right place that meets their needs, and they are involved in any decisions about their care.
NHS England has published final CTR policy and guidance (CTR policy and guidance in easy read also available) that outlines what a CTR is, the required standards, and how they should be done, along with a toolkit for commissioners and easy read leaflets for people with learning disabilities and/or autism, and their families or carers.
Read the full story on the NHS England website (opens in new window)
Nic Crosby
I have worked alongside young people since starting out as a worker at Kettlewell Youth Hostel in the Yorkshire Dales when I was 16, supporting children and young people funded by a Gingerbread group in Bradford, taking them climbing and down caves and generally having a good time!
Work and life has been very varied since I finished college….working on an organic smallholding, painting pictures, taking NVQ’s in IT and business and then getting my first job supporting disabled people at an institution ….I lasted a year and supported all three of my ‘key clients to move out’ and not making myself incredibly popular with the management. Since then I’ve followed my passion to make a difference, working in local authority services, in a Health Action Zone project on transition and then with the Foundation for People with Learning Disabilities, Paradigm where I first starting supporting young people to take up individual budgets (the DYNAMITE project) and since 2006 I’ve worked with In Control to develop personal budgets and person centred support for children and young people……and this work goes on.
My offer of support or the expertise I might be able to offer is around all things personal budgets and children and young people including legislation, practice guidelines, myths and myth busting, working alongside schools, colleges, social care services and health services. And if I can’t help I’ll probably know someone who can ….fingers crossed I can help J
Saga Care Funding Advice Service - Essential Facts
Free resource - Saga Care Funding Advice Service - Essential Facts (click to download pdf)
Case Study: Direct Payments for Access to Leisure Opportunities
Zoe Thompson shares details with Justice Together of how they used RAS and statutory guidance to get Direct Payments for access to leisure opportunities
Background
We applied for a Child in Need assessment for P (16 year old male) under Section 17 of the Children Act. P’s needs were assessed using the RAS form (Resource Allocation System). Here is a link to a blank copy of a RAS form.
It is very long but has been useful, not just for direct payments but also as part of the evidence that was submitted to transfer P from DLA to PIP, where his funding was actually increased.
We have also found the RAS form useful for providing evidence for P’s EHC Plan. So the form is long but it was worth doing in our case.
The most important bit of the RAS form is probably the bit where it tells you how many points equate to what indicative budget. This is how our local authority calculate it:
Read the full story on the Justice Together website (opens in new window)
Care Funding - Request a Guide
An active and secure retirement is something we like to think we're all entitled to and we find it hard to imagine a time beyond that, when we may need care from other people. What's more, many people do not realise they may need to fund the care themselves.
This guide will introduce you to the major issues surrounding long term care and some of the options available.
Link to a form to fill in to enable you to download the guide (opens in new window)
Learning Disability Health Toolkit
This document contains all the information you should need to allow you to support people with learning disabilities on a day-to-day basis, to help them to improve and maintain their health. We do not think health should be seen as something separate, something we think about when we have time or when someone is ill. We should be more proactive than that. We should use every day routines to observe people’s health and wellbeing, to ensure we are doing everything we can to support them.
Download the Learning Disability Health Toolkit here (opens in a new window) http://www.turning-point.co.uk/media/1098784/11643-healthcaretoolkit-lr.pdf
What to do when you are depressed
http://inkandfeet.com/what-to-do-when-youre-depressed Blog with help and advice if you are suffering from depression - also includes how to help someone with depression http://inkandfeet.com/how-to-help-someone-with-depression
Difficulties in visiting a mental health patient because of distance
Mental Health Act 1983: Code of Practice states that:
14.85 "When a patient’s carer informs the commissioner of difficulties in visiting the patient because of the distance that they need to travel, the commissioner should consider whether they can provide any assistance to support the patient’s carer to visit and maintain contact with the patient. The commissioner should inform the carer that they can request a carer’s assessment from the local authority. CCGs should work with the relevant NHS Commissioning Board regional team under these circumstances to seek to move the patient closer to their preferred location."